September is Alopecia Awareness Month. Last Friday, NBA veteran Charlie Villanueva guest hosted the National Alopecia Areata Foundation’s Cheers for cHARity fundraiser at the Manhattan hotspot DOUX (formerly The Vanity NYC).
Villanueva has been a spokesperson and advocate for Alopecia awareness since he was drafted out of UCONN in 2005.
Alopecia is an autoimmune disease. As per webmd: alopecia is a type of hair loss that occurs when your immune system mistakenly attacks hair follicles The damage to the follicle is usually not permanent. Experts do not know why the immune system attacks the follicles.
Alopecia areata is most common in people younger than 20, but children and adults of any age may be affected. Women and men are affected equally.
“I have always said my purpose in life has been to inspire people,” said Villanueva. “I hope my presence at such a prestigious event will continue to encourage people to always follow their dreams no matter the circumstances.”
Villanueva actually inspired me. Last year I woke up seeing clumps of my hair laying on my pillow.
After a series of tests at the doctor’s office, I was diagnosed with alopecia areata, No it’s not contagious! Being around the game of basketball for a long time all I could think of was Villanueva’s fight as a champion for alopecia.
I didn’t know how to handle it and I kept it to myself.
My perspective would change when I’d meet rising Chicago artist, Keya Trammell. She encouraged me to share my story.
After attending Charlie Villanueva’s event in Manhattan and meeting Dory Kranz CEO of the National Alopecia Areata Foundation I was encouraged by how well the foundation is doing and I shared my story via instagram:
#SwipeLeft ⬅️ They say beauty is truly in the eye of the beholder, right?! Okay, well here goes my truth: last year I woke up seeing clumps of my hair laying on my pillow. What was wrong with me?! I went to the doctor and after a series of tests I was diagnosed with alopecia areata, an auto immune disease. No it’s not contagious! Being around the game of basketball for a long time all I could think of was @cvbelieve, a champion for alopecia. Those closest to me are aware of my condition, but I asked them to keep it private. Believe it or not, I’m a pretty private person…but I pride myself on being authentic in everything that I do. But I felt weird walking around with a bald head and when asked what made me do it, I’d reply with: ‘it’s just for style.’ It didn’t feel right to lie about it. I was embarrassed! My perspective would change when I’d meet @giftedkeys in Chicago in April. She’s doing great work as an advocate for alopecia. She’s often encouraged me to share my story. She called me last week and told me that September is Alopecia Awareness Month. That’s a thing??? Apparently it is! I got an email last week from @byrobertoelia inviting me to his brother, Charlie V’s @cheersforCHAIRITY fundraiser in Manhattan over the weekend. I was encouraged by meeting people both young and old telling their story. While there I met, Dory Kranz CEO of the National Alopecia Areata Foundation ( @alopeciaaaaf ) and was encouraged by how well the foundation is doing. Over the weekend, I sat and thought, spoke to those closest to me and they all agreed that my decision to make my story public was encouraging in a social media world where everything seems perfect. So here I am, Brandon ‘Scoop B’ Robinson, a rising star in my field with a platform, encouraging others like myself to keep on keepin on despite this disease. I’m confident enough to share with you during Alopecia Awareness Month that not only do I have it, I’m fighting it! If you have it, you can fight it too! #AlopeciaAwarenessMonth #cheersforchairity #whatisalopecia #alopecia
I’m confident enough to share with you during Alopecia Awareness Month that not only do I have it, I’m fighting it! If you have it, you can fight it too!